![]() ![]() ![]() ![]() I start by asking them what state they live in and what kind of waiver they’re on, and then they ask me, ‘What’s a waiver?’ The system is so complex that oftentimes the principal stakeholders don’t understand the main points they need.’” ‘I can’t tell you how many times I’ve had siblings call me up, frantic and scared, because a parent has just died or gone into a nursing home and they don’t know what to do with their autistic brother. “Desiree Kameka, project leader of the Autism Housing Network, gets a little emotional when she speaks on this subject. McGovern spoke with Desiree at length about the difficulties in finding answers to this question in her book. The Autism Housing Network is honored to be featured prominently in this book, which explores the question, “What happens to autistic children when they become adults?” This is the same burning question that ultimately prompted the creation of the Madison House Autism Foundation, of which AHN is a project. Her recently-published book, Hard Landings, expands on her experience raising her son Ethan and the vast research required for her #1 New York Times op-ed piece, “ Looking Into the Future for a Child with Autism ,” published in 2017. Cammie McGovern knows firsthand the challenges and worries in facing a future for a child becoming an adult with autism and intellectual disability. ![]()
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